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3.2.18

stubborn . hope


"Hope begins in the dark, the stubborn hope that if you just show up and try to do the right thing, the dawn will come. You wait and watch and work: you don't give up."
~A. Lamott
Last November, The Man and I found out that The Boy had a high chance of having childhood glaucoma. We had a few follow up appointments that said pretty much the same thing. 
I did a bit of research, and was optimistic that IF he did, we had caught it early.
It was a strange thing, because I kept thinking of all the things that he loved to do - reading books was at the top of the list.

It's not to say that he would never be able to read again, IF he had gone blind,  but somehow, my head space was surrounded by these thoughts of him.

I was worried and sad.

By the end of the year, we had an appointment set for the first week of January. That appointment led us to The Children's Hospital where we would, once and for all get our answer.


It was a bleak morning when we set out for his tests.

The tests were to take no more than 2.5 hours. 
For some reason I felt good about that. 
I thought, we will go in early, and by noon(ish) we will know what we are dealing with.

I am joyful as I write these words. SubhanAllah, HE does not have glaucoma. Yes, there is an issue, but it is not THAT issue. It is a diagnosis that we can live with. More importantly, it is one HE can live with and thrive.

We are so relieved, and happy, AND ready to take on the other issue, inshaAllah.


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